Monday, 20 May 2013

Epilepsy Canada Announces a Call for Research Funding Submissions

Epilepsy Canada today announced that it is again accepting submissions to support research trainees in any area of research pertaining to epilepsy.  Executive Director Gary Collins says, “With this particular call, we are seeking to fund a post-doctoral researcher and a summer studentship associated with a Canadian university or hospital.”  He added research activities must be conducted within Canada to qualify for the funding.

Epilepsy Canada's mission is to support research (in the biomedical, clinical or social sciences) that is focused on improving the lives of people with seizure disorders.  The association is very proud of the high quality of young researchers and the research projects it sponsors.

 A rigorous grant review process headed by Epilepsy Canada President Dr. W. McIntyre Burnham, is carried out by individuals from the medical and scientific communities across Canada. Mr. Collins says the peer review process ensures that Epilepsy Canada is making the best possible use of research dollars and investing in the most promising research.

Research Fellowships are intended to develop expertise in clinical or basic sciences epilepsy research and improve the quality of care for epilepsy patients in Canada. Each year, funds are available to young Canadian researchers with an M.D. or Ph.D. degree.

Summer student bursaries are intended for third and fourth year undergraduates earning a B.Sc., graduate students in psychology, sociology, biochemistry, and medical students. The purpose of this bursary is to encourage individuals to pursue careers in epilepsy, in research or practice-settings.

Interested parties can submit a proposal via email to Mr. Collins at the following address, garycollins@epilepsy.ca. The deadline for 2013 submissions is June 14.  Further details can be obtained by visiting the Epilepsy Canada website www.epilepsy.ca  and following the links to 2013 Call for Submissions.

Wednesday, 24 April 2013

RESEARCH PARTICIPANTS NEEDED

Are you a person with a disability or the immediate

family member of a person with a disability?

The Government of Canada is conducting a study about government
programs for persons with disabilities and issues related to saving for
the future. If you or your immediate family member with a disability is in receipt of
the federal Disability Tax Credit, you might be eligible for the study.

As a participant in this study, you will be asked to participate in:
1) a 2 hour focus group or
2) a 40 minute telephone interview.

In appreciation for your time, you will receive a $75 cash honorarium.
To volunteer for this study, please contact us at 1-866-770-4649 and
leave a message with your name and telephone number. Someone will
call you back to confirm your eligibility for the research.
This study is being conducted on behalf of the Government of Canada
by Phoenix SPI, an independent Canadian research firm.
Your personal information will be treated in complete confidence.

Sessions will be held during May in a number of Canadian cities:

May 14th - Moncton
Corporate Research Associates
68 Highfield Street
Suite 101
888.414.1336
Fax: 506.859.1691

May 15th - Vancouver
Vancouver Focus (JMI)
1156 Hornby Street
604.682-4292
Fax: 682.8582

May 15th - Montreal
Ad Hoc Research
1250 Guy Street
Suite 900
514.937.4040
Fax: 935.7700
 

May 16th - Whitehorse
Coast High Country Inn
4051- 4th Avenue
867.667.4471
Fax: 667.6457
 

May 16th - Sherbrooke
Delta Hotel & Conference Centre
2685 Rue King Ouest
819.822.1989
Fax: 822.8990

To volunteer for this study, please contact us at 1-866-770-4649 and leave a message with your name and telephone number. Someone will call you back to confirm your eligibility for the research.

This study is being conducted on behalf of the Government of Canada by Phoenix SPI, an independent Canadian research firm.



Your personal information will be treated in complete confidence.

Wednesday, 6 March 2013

Epilepsy Canada Turns To Social Media to Drive Fundraising Effort during National Awareness Month

Epilepsy Canada has recruited Pickles, Love Blaster and a growing number of social media supporters to help meet its fundraising goals. March is Epilepsy Awareness month and the agency is asking supporters across the country to create local fundraising events using its secure, web-based fundraising program.
Pickles and Love Blaster are among the first teams to register to raise funds at the charity’s
Quiet No More website.Team Pickles -- named in honour of 20-month old Nicholas Webster of Ottawa who was diagnosed with epilepsy last year-- has set a team goal of $10,000. His mother Wendy told us, “Without medication Nicholas has up to 17-20 seizures a day.”  Though appreciative of the relief that drug therapy provides her son, Ms. Webster is concerned about the long-term effect the medication may have on her child’s future. Research, she believes is the only way to find an alternative to drugs.

Over 300,000 Canadians currently battle the neurological disorder that results in seizures. Another 15,000 are expected to be diagnosed with the condition this year.

Gary Collins, Executive Director of Epilepsy Canada says, “This campaign is our latest effort to bring attention to the need for research funding for epilepsy.” He says patients who receive an epilepsy diagnosis have their lives turned upside down. To manage their condition they must rely on medication, invasive brain surgery or extremely restrictive diet regimens: therapies that are not effective in every case.

Mr. Collins, an epileptic himself says, “Epilepsy can also lead to other issues such as depression and one in 100 people diagnosed with epilepsy die of SUDEP” (sudden unexpected death related to epilepsy).

Epilepsy Canada is the only national not for profit agency that focuses solely on raising money to assist with research into the condition.  It annually funds projects at Canadian universities and medical centres aimed at determining the causes of the condition and better ways to treat it.  The charity receives no direct government funding and relies on corporate and private donations to reach its funding targets.

“The Quiet No More campaign is our most aggressive use of social media to date says Mr. Collins.  “We are appealing to everyone to build their own personal fundraising event using the online tools we have provided through the Quiet No More website and share their commitment with friends on Facebook and Twitter.”

Information about the campaign and how supporters may get involved can be found at www.epilepsy.ca or by sending an email to support@epilepsy.ca

Wednesday, 13 February 2013

An RDSP can help epilepsy families with long-term financial security

Tax season is upon us: the time of year Canadians traditionally make donations to an RRSP to benefit from immediate tax savings and to shelter money for retirement. If your family is one of the over 300,000 in Canada that live with epilepsy you can also benefit from a Registered Disability Savings Plan (RDSP).

Mark Lundquist, a financial planner with Edward Jones says, “Qualifying individuals can receive up to 300% of their contributions matched in the form of government grants, making an RDSP a very attractive investment option.”

How can people with disabilities benefit from the RDSP?
The structure of an RDSP is similar to the Registered Education Savings Plan (RESP). The RDSP allows money to be invested, exempt from tax until it’s withdrawn. Benefits include:

1) Contributions are matched by federal grants. The federal government will match contributions made to the RDSP with Canada Disability Savings Grants. Grant amount depends on the size of the annual contribution as well as family net income. These grants are available until the year the beneficiary turns 49, to a maximum of $70,000.
2) Low-income families receive an additional bond. Families whose net income is $37,885 or less will receive annual Canada Disability Savings Bonds of up to $1,000 towards the RDSP. Like the grant, these bonds can be received until the year the beneficiary turns 49 years old, up to a lifetime limit of $20,000.
3) Investment income is tax-exempt until withdrawal. Earnings generated by contributions to the savings plan are tax-exempt while they stay in the plan. When earnings are withdrawn, they are taxable in the hands of the beneficiary and likely to be taxed at a lower rate.

Who is eligible?
To qualify for the RDSP, you must be eligible for the Disability Tax Credit and have submitted a Form T2201, Disability Tax Credit Certificate to the Canada Revenue Agency. The two basic conditions are that (1) your disability has lasted (or is likely to last) at least 12 months and (2) your ability to carry out basic activities of daily living are significantly restricted. A brief questionnaire to help see if you qualify and Disability Tax Certificate application forms are available from the Canada Revenue Agency. Visit their website or call 1-800-959-8281.
To learn more about the Registered Disability Savings Plan ask a qualified financial advisor.  Mr. Lundquist can be contacted at mark.lunquist@edwardjones.com .

Sunday, 3 February 2013

Sick Kids Hospital Hosts Epilepsy Family Education Day - Coming March 3

The 3rd Epilepsy Family Education Day hosted by SickKids and the Ontario Brain Institute is quickly approaching. It will be held on Sunday March 3, 2013 from 10am to 4pm at the Hollywood Theatre in the Hospital for Sick Children.

Families that have children with epilepsy will want to note this opportunity. The focus of the symposium is to provide information about resources, treatment and current research.

Registration for the event is free online at http://www.sickkids.ca/Learning/learning-opportunities/upcoming-conf/index.html. There you will also find driving directions, parking and other important information.


Wednesday, 2 January 2013

Epilepsy Canada announces funding partnership to turn old laptops into new research dollars

Toronto: Epilepsy Canada today announced a new partnership with the Green4Good™ program. An innovative initiative of Compugen Finance, Green4Good offers Canadian enterprises an effective way to solve the challenge of disposing of old IT equipment while raising money for charity.

Epilepsy Canada is counting on the program to turn old laptops into a new source of research funds. It will channel all dollars it receives into research for new therapies and treatments of epilepsy. Over 300,000 Canadians live with the neurological disorder that causes sudden bursts of hyperactivity in the brain and reveals itself in the form of seizures. 

Steve Byrne, Director of Green4Good says, "Each year companies around the world divest themselves of massive amounts of IT equipment that no longer serves their purposes. This presents a big environmental challenge. Much of this equipment can end up in land fill sites."

Compugen Finance developed the Green4Good as a comprehensive approach to the disposal of decommissioned corporate IT assets–desktops, notebooks, servers, printers, monitors, network components, etc.–that eliminates any negative environmental effects and allows organizations to leverage any residual value in those assets. Green4Good then turns the net gains from IT asset disposition into support–cash and/or new technology products/services–for their chosen charities.

Gary Collins, Executive Director of Epilepsy Canada, accepted an initial donation of $2,000 from Compugen Finance, but sees this as a "down payment on the potential benefit".  He says that he will encourage Epilepsy Canada's other corporate sponsors to get on board with this program and turn their aging laptops, printers, servers and other IT equipment into dollars for epilepsy research.

Epilepsy Canada is the country's only national organization with a mission to enhance the quality of life for persons living with epilepsy through the funding of research. It receives no government money and relies totally on individual and corporate donations to achieve its goals.
Compugen is dedicated to simplifying the business of technology. Since 1981, it has provided innovative solutions and services to help customers leverage their investments in technology infrastructure.